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Current HREC approvals for ALSWH data linkage

HREC Name and
NHMRC code
ALSWH Protocol #Approval dateExpiry dateCoverageCohorts*
The University of Newcastle HREC
EC00144
(ratified by The University of Queensland HREC
EC00456/7)
H-2011-0371
(2012/HE000132)
31/01/201231/12/2030ALSWH Data linkage Project
(all collections, subject to external jurisdictional approvals)
All women
Australian Institute of Health and Welfare HREC
EC00103
EC2020/3/1115
- subsumes:
EC2012/1/12
EO2013/1/7
EO2014/3/110
16/08/2020

12/04/2012
27/03/2013
31/01/2014
31/12/2030Medicare Benefits Schedule (MBS)
Pharmaceutical Benefits Scheme (PBS)
National Aged Care Data Collection
DVA Aged Care and Repatriation-MBS/PBS
Australian Cancer Database
National Death Index (NDI)
All women
EO2017/1/3427/03/201731/12/2025Mothers and their Children's Health (MatCH) Substudy:
AEDC
NAPLAN
Children of
1973-78
Departments of Defence and Veterans' Affairs HREC
EC00460
EO14/02219/12/201423/06/2024DVA Aged Care data
Repatriation-MBS/PBS
1921-26
(25% are DVA clients)
1946-51
(1% are DVA clients)
Services Australia External Request Evaluation CommitteeRMS200117/02/2022Mothers and their Children’s Healthcare Experiences (MatCHES) Substudy
MBS
PBS
Australian Immunisation Register (AIR)
Children of
1989-95
RMS2107Cohort Refresh:
MBS
PBS
1973-78
NSW Population and Health Services Research Ethics Committee
EC00410
2019/ETH01837
(formerly 2011/11/357)
03/01/201231/12/2025NSW data linkage
Queensland data linkage
(from 13/04/2018)
All women
ACT Health HREC
EC00100
ETH.6.13.14801/07/201331/07/2026ACT data linkage
Victorian data linkage except VPDC
(from 22/08/2018)

SA data linkage
(from 19/09/2020; formerly HREC/12/SAH/91)

NT data linkage
(from 27/05/2021; formerly 2018-3017)
All women
Calvary Bruce Public HREC
EC00105
21-202024/11/2020ClosedACT Emergency Department Data Collection All women
Austin Health HREC
EC00204
HREC/18/ Austin/16317/07/2018ClosedVIC Perinatal Data Collection (VPDC)All women
Dept of Health WA HREC
EC00422
RGS 4844
(formerly RGS 2853; 2015/47)
16/08/202116/08/2024WA data linkageAll women
Tasmanian Health & Medical HREC
EC00337
H001719219/04/201831/12/2024TAS data linkageAll women
View the list of current data collections, custodians and data linkage units Go to page
View institutional HREC approvals for ALSWH survey collectionsGo to page
HREC = Human Research Ethics Committee
* Women who have opted out of health record linkage are excluded from data requests.
- Calvary Bruce Public Hospital, now known as North Canberra Hospital, is now part of Canberra Health Services and ethics approvals are overseen by ACT Health HREC.
- Due to the current data sharing requirements of the VPDC data custodians, ALSWH will not be releasing Victorian Perinatal data until further notice.