Icons / Login Created with Sketch.
Icons / User Created with Sketch.

Acknowledgement of linked data sources

Survey data from the Australian Longitudinal Study on Women’s Health are complemented by an extensive health record linkage program. Linked data are essential for our comprehensive analyses of women’s health and health service utilisation, which ultimately inform Australian health policy.

The Study is extremely grateful to the responsible Data Custodians and Data Linkage Units for access to these collections. Specifically, we acknowledge the organisations and collections listed below.

Researchers: please refer to Publishing linked data research for guidance on acknowledgement text to be included in your research outputs.

Ethical approvals for the ALSWH Data Linkage Program can be found here.

Data Custodian

Data Linkage Unit

Collection name

National collections:
The Australian Government Department of Health and Aged CareAustralian Institute of Health and Welfare (AIHW)Medicare Benefits Schedule (MBS)
Pharmaceutical Benefits Scheme (PBS)
National Aged Care Data Collection (NACDC)
The Department of Veterans’ Affairs (DVA)AIHWRepatriation Medicare Benefits Schedule (R-MBS)
Repatriation Pharmaceutical Benefits Scheme (R-PBS)
Veterans' Home Care Program (VHC)
Community Nursing Program
AIHW / State and Territory Cancer RegistriesAIHWAustralian Cancer Database (ACD)
AIHW / State and Territory Death RegistriesAIHWNational Death Index (NDI)
Cause of Death (COD)
State/ Territory collections:
ACT HealthCentre for Health Record Linkage (CHeReL)ACT Admitted Patient Care (APC)
ACT Emergency Department Data Collection (EDDC)
ACT Perinatal Data Collection (PDC)
NSW Ministry of HealthNSW Ministry of Health CHeReL

NSW Admitted Patients Data Collection (APDC)
NSW Emergency Department Data Collection (EDDC)
NSW Perinatal Data Collection (PDC)
The Northern Territory Department of HealthSA NT DatalinkNT Public Hospital Inpatient Activity
NT Public Hospital Emergency Department Data Collection
NT Perinatal Trends Data Collection
Queensland HealthQueensland Health Statistical Services BranchQueensland Hospital Admitted Patient Data Collection (QHAPDC)
Queensland Emergency Data Collection (EDC)
Queensland Perinatal Data Collection (QPDC)
SA HealthSA NT DatalinkSA Public Hospital Separations
SA Public Hospital Emergency Department Data Collection
SA Perinatal Statistics Data Collection
The Department of Health, TasmaniaTasmanian Data Linkage Unit (TDLU)Tasmanian Public Hospital Admitted Patient Episodes
Tasmanian Emergency Department Presentations
Tasmanian Perinatal Data Collection
The Department of Health, VictoriaCentre for Data Linkage Victoria (CVDL)Victorian Admitted Episodes Dataset (VAED)
Victorian Emergency Minimum Dataset (VEMD)
Victorian Consultative Council on Obstetric and Paediatric Mortality and Morbidity (CCOPMM)Centre for Data Linkage Victoria (CVDL)Victorian Perinatal Data Collection (VPDC)
The Department of Health, Western AustraliaThe Department of Health, Western Australia, Data Linkage BranchWA Hospital Morbidity Data Collection (HMDC)
WA Emergency Department Data Collection (EDDC)
WA Midwives Notification System (MNS)
The Population Health Research Network (PHRN) also assisted with data requests in SA, NT, Victoria and Tasmania
Mothers and their Children Health (MatCH) Substudy - Linked educational collections on children:
The Australian Government Department of Education and TrainingAIHWAustralian Early Development Census (AEDC)
National Assessment Program – Literacy and Numeracy:
ACT Education Directorate N/AACT NAPLAN
NSW Education Standards Authority AIHWNSW NAPLAN
NT Department of Education N/ANT NAPLAN
QLD Curriculum and Assessment Authority N/AQLD NAPLAN
SA Department for Education N/ASA NAPLAN
TAS Department of Education N/ATAS NAPLAN
VIC Curriculum and Assessment Authority N/AVIC NAPLAN
WA School Curriculum and Standards Authority N/AWA NAPLAN