Acknowledgement of linked data sources
Survey data from the Australian Longitudinal Study on Women’s Health are complemented by an extensive health record linkage program. Linked data are essential for our comprehensive analyses of women’s health and health service utilisation, which ultimately inform Australian health policy.
The Study is extremely grateful to the responsible Data Custodians and Data Linkage Units for access to these collections. Specifically, we acknowledge the organisations and collections listed below.
Researchers: please refer to Publishing linked data research for guidance on acknowledgement text to be included in your research outputs.
Ethical approvals for the ALSWH Data Linkage Program can be found here.
Collection name | Data Custodian | Data Linkage Unit |
|---|---|---|
| National collections: | ||
| Medicare Benefits Schedule (MBS) Pharmaceutical Benefits Scheme (PBS) Australian Immunisation Register (AIR) National Aged Care Data Collection (NACDC) | The Australian Government Department of Health and Aged Care | Australian Institute of Health and Welfare (AIHW) |
| Repatriation Medicare Benefits Schedule (RMBS) Repatriation Pharmaceutical Benefits Scheme (RPBS) Veterans' Home Care Program (VHC) Community Nursing Program | The Department of Veterans’ Affairs (DVA) | |
| Australian Cancer Database (ACD) | AIHW & State and Territory Cancer Registries | |
| National Death Index (NDI) Cause of Death (COD) | AIHW & State and Territory Death Registries | |
| State/ Territory collections: | ||
| ACT Admitted Patient Care (APC) ACT Emergency Department Data Collection (EDDC) ACT Perinatal Data Collection (PDC) | ACT Health | Centre for Health Record Linkage (CHeReL) |
| NSW Admitted Patients Data Collection (APDC) NSW Emergency Department Data Collection (EDDC) NSW Perinatal Data Collection (PDC) | NSW Ministry of Health | |
| Queensland Hospital Admitted Patient Data Collection (QHAPDC) Queensland Emergency Data Collection (EDC) Queensland Perinatal Data Collection (QPDC) | Queensland Health | Data Linkage Queensland |
| SA Public Hospital Separations SA Public Hospital Emergency Department Data Collection SA Perinatal Statistics Data Collection | SA Health | SA NT Datalink* |
| NT Public Hospital Inpatient Activity NT Public Hospital Emergency Department Data Collection NT Perinatal Trends Data Collection | The Northern Territory Department of Health | |
| Tasmanian Public Hospital Admitted Patient Episodes Tasmanian Emergency Department Presentations Tasmanian Perinatal Data Collection | The Department of Health, Tasmania | Tasmanian Data Linkage Unit (TDLU)* |
| Victorian Admitted Episodes Dataset (VAED) Victorian Emergency Minimum Dataset (VEMD) | The Department of Health, Victoria | Centre for Victorian Data Linkage (CVDL)* |
| Victorian Perinatal Data Collection (VPDC) ^ | Victorian Consultative Council on Obstetric and Paediatric Mortality and Morbidity (CCOPMM) | |
| WA Hospital Morbidity Data Collection (HMDC) WA Emergency Department Data Collection (EDDC) WA Midwives Notification System (MNS) | The Department of Health, Western Australia | The Department of Health, Western Australia, Data Linkage Branch |
| ^ VIC Perinatal Data is no longer available | * Lodged via the Population Health Research Network (PHRN) | |
| Mothers and their Children Health (MatCH) Substudy - Linked educational collections on children: | ||
| Australian Early Development Census (AEDC) | The Australian Government Department of Education and Training | AIHW |
| National Assessment Program – Literacy and Numeracy (NAPLAN) | ACT Education Directorate | N/A |
| NSW Education Standards Authority | AIHW | |
| NT Department of Education | N/A | |
| QLD Curriculum and Assessment Authority | N/A | |
| SA Department for Education | N/A | |
| TAS Department of Education | N/A | |
| VIC Curriculum and Assessment Authority | N/A | |
| WA School Curriculum and Standards Authority | N/A | |