Acknowledgement of linked data sources
Survey data from the Australian Longitudinal Study on Women’s Health are complemented by an extensive health record linkage program. Linked data are essential for our comprehensive analyses of women’s health and health service utilisation, which ultimately inform Australian health policy.
The Study is extremely grateful to the responsible Data Custodians and Data Linkage Units for access to these collections. Specifically, we acknowledge the organisations and collections listed below.
Researchers: please refer to Publishing linked data research for guidance on acknowledgement text to be included in your research outputs.
Ethical approvals for the ALSWH Data Linkage Program can be found here.
Data Custodian | Data Linkage Unit | Collection name |
|---|---|---|
| National collections: | ||
| The Australian Government Department of Health and Aged Care | Australian Institute of Health and Welfare (AIHW) | Medicare Benefits Schedule (MBS) Pharmaceutical Benefits Scheme (PBS) National Aged Care Data Collection (NACDC) |
| The Department of Veterans’ Affairs (DVA) | AIHW | Repatriation Medicare Benefits Schedule (R-MBS) Repatriation Pharmaceutical Benefits Scheme (R-PBS) Veterans' Home Care Program (VHC) Community Nursing Program |
| AIHW / State and Territory Cancer Registries | AIHW | Australian Cancer Database (ACD) |
| AIHW / State and Territory Death Registries | AIHW | National Death Index (NDI) Cause of Death (COD) |
| State/ Territory collections: | ||
| ACT Health | Centre for Health Record Linkage (CHeReL) | ACT Admitted Patient Care (APC) ACT Emergency Department Data Collection (EDDC) ACT Perinatal Data Collection (PDC) |
| NSW Ministry of Health | NSW Ministry of Health CHeReL | NSW Admitted Patients Data Collection (APDC) NSW Emergency Department Data Collection (EDDC) NSW Perinatal Data Collection (PDC) |
| The Northern Territory Department of Health | SA NT Datalink | NT Public Hospital Inpatient Activity NT Public Hospital Emergency Department Data Collection NT Perinatal Trends Data Collection |
| Queensland Health | Queensland Health Statistical Services Branch | Queensland Hospital Admitted Patient Data Collection (QHAPDC) Queensland Emergency Data Collection (EDC) Queensland Perinatal Data Collection (QPDC) |
| SA Health | SA NT Datalink | SA Public Hospital Separations SA Public Hospital Emergency Department Data Collection SA Perinatal Statistics Data Collection |
| The Department of Health, Tasmania | Tasmanian Data Linkage Unit (TDLU) | Tasmanian Public Hospital Admitted Patient Episodes Tasmanian Emergency Department Presentations Tasmanian Perinatal Data Collection |
| The Department of Health, Victoria | Centre for Data Linkage Victoria (CVDL) | Victorian Admitted Episodes Dataset (VAED) Victorian Emergency Minimum Dataset (VEMD) |
| Victorian Consultative Council on Obstetric and Paediatric Mortality and Morbidity (CCOPMM) | Centre for Data Linkage Victoria (CVDL) | Victorian Perinatal Data Collection (VPDC) |
| The Department of Health, Western Australia | The Department of Health, Western Australia, Data Linkage Branch | WA Hospital Morbidity Data Collection (HMDC) WA Emergency Department Data Collection (EDDC) WA Midwives Notification System (MNS) |
| The Population Health Research Network (PHRN) also assisted with data requests in SA, NT, Victoria and Tasmania | ||
| Mothers and their Children Health (MatCH) Substudy - Linked educational collections on children: | ||
| The Australian Government Department of Education and Training | AIHW | Australian Early Development Census (AEDC) |
| National Assessment Program – Literacy and Numeracy: | ||
| ACT Education Directorate | N/A | ACT NAPLAN |
| NSW Education Standards Authority | AIHW | NSW NAPLAN |
| NT Department of Education | N/A | NT NAPLAN |
| QLD Curriculum and Assessment Authority | N/A | QLD NAPLAN |
| SA Department for Education | N/A | SA NAPLAN |
| TAS Department of Education | N/A | TAS NAPLAN |
| VIC Curriculum and Assessment Authority | N/A | VIC NAPLAN |
| WA School Curriculum and Standards Authority | N/A | WA NAPLAN |